Another day

Very weak and tired today. I tried to be up and about, but felt winded from attempting even small tasks like moving my computer chair (it's on wheels) and getting up for a glass of water. One thing I did manage to do was water my garden. All the seeds have now sprouted, and are sporting tiny pairs of green leaves. I had trouble keeping my balance once I got back inside and bumped into the door jamb a few times before reaching my bed. I rested a while, called some friends to pass the time, then sat up for a bit and did some paper crafts....I must have made about 5 pinwheels - one from a photocopy I made of a ten dollar bill - before I got dizzy and had to stop.
I faxed the final paperwork needed to process my application for food stamps and medical insurance to the state DES office. I should hear back in a few weeks.

Grrrr

I missed an appointment with my therapist today. I called her around 4am to let her know I was not able to sleep and would likely be too exhausted to make it in. That was all the notice I could give her. I hate this! I dozed off shortly after calling her and woke around 1 pm....my appointment was at noon. I was hardly able to move and it took a lot of time and effort to get my muscles awake enough to get out of bed. I called her back and requested another appointment later in the week if she had it open.
On a happier note, my watermelon seeds are sprouting! :) I stumbled out to water them today and the first has two leaves already, and the second is pushing up thru the dirt. I'm excited! :)
Also, a small black bird with a bright yellow curved beak has made our date palm it's home....and I can year tiny chirps coming from it's nest inside the tree.....likely left by a woodpecker from a previous season, as the hole is not new. My brother Mike put a ladder up for me and I slowly made my way to the nest - camera in hand. Sadly the hole was too deep for my lens to capture the baby birdies thru the narrow opening. I will have to wait a while and possibly catch them when they're large enough to start poking their heads out.

Sleep

I didn't sleep well last night, and have been even more tired today than yesterday. I woke up at 8am and could barely stand, so I went back to bed and slept 'til 2pm..a total of 12 hours. Since waking I've had a head full of cotton and been very weak.

Weaker

I am weaker yet today, my burning muscles restricting my movements even more :-(
I borrowed money from dad to take a cab two blocks from here to the DES office. I hate feeling so weak and incapable!

Blaaaah

I seem to be a little more tired each day, even though I'm really not exerting myself at all. My muscles are burning more also, especially when reaching for something or going from sitting to standing. They also burn a lot when I hold a position for more than a few seconds...like standing or holding a glass of water.

A good day

I slept 3 hours past my alarm this morning, a total of 14 hours...I guess I needed the extra sleep. I didn't do much today, just had some food and rested til my friends picked me up for game night. It was a total blast...10 people there this time. Lordy, I don't remember the last time I laughed so hard. :-D Going to bed early sounds like a good idea. All that fun just wore me plum out!

Alone

My dad left on a 3 day camping trip today with my 3 brothers. He did not bother to tell me. He took the truck, food, spices and cooking utensils etc. If I hadn't caught him on his way out to get 20 bucks in case of an emergency I would have been left without a way to get to hospital, or money for food. I am very angry that I was forgotten in his plans, and am trying to settle down so I can sleep.
Also, my baby sister did not come home from school today. I tried texting and calling her. She did not answer or return my messages. With no way to contact my dad, I rang my older sister and got my mom's phone number. She agreed to drive to baby sister's boyfriend's apartment to see if she was there and ok. She was - thank goodness! - watching a movie and didn't hear her cell phone ring. Her boyfriend is out of town so she had gone over there after school to tidy up for him. She is supposed to call me in a few minutes to let me know if she is coming home tonight or sleeping there.

Good things in the works

OK, I finally got another phone appointment with the state for food stamps and medical insurance, and they called me this time! I just have to send them a few documents and have my fingerprints taken. Whew!
In other news, my medical doctor has agreed to sign my paperwork for disability, and also provide information on my condition to para-transit. Yay! What a relief it will be to have the freedom to schedule doctor appointments etc, and not have to worry about how to get there.
Also, I started seeing a therapist to help me deal with the anger I've been feeling about this whole situation. It's pretty tough to be trapped in my own body day in and day out, and I just get so frustrated. So, hopefully talking with her will help me sort it out.
And last but not least, I finished and printed my first coloring book :-D I will be contacting yoga studios and local bookstores to see how many they would like to buy :-)

Stoooopid government offices!

I was not contacted for my phone appointment yesterday ( for emergency food stamps and medical insurance)....grrrr. I was told they called me twice and got my voicemail, but I had the phone in my hand from an hour before to an hour after my appointment, and it did not ring. I even called them when my appointment time had passed and left a message. My guess is that someone in the department is dyslexic and transposed some of the digits in my phone number. I will be pestering them again today.
In other news, I did some more research and found a local copy shop that will let me use their binding machine if I bring my own binders... :-D As soon as my funds transfer goes through to my checking account, I'll see about getting a ride or borrowing my older sister's car while she's at work....she parks it here and rides her bike to and from work.
Today I will be getting my originals ready for printing, and shopping around for affordable comb binders. Ta-ta for now!

Food stamps!!

I have a phone appointment in about 2 hours to get emergency food stamps and renew my health insurance. Yay! I'm very glad, as they lost my last application, and I've been living on pb&j's.
I've been feeling very weak, so today I'll be spending most of my time indoors at the computer or in bed. I plan to mail letters to collections agencies and search for an affordable binding machine for my coloring books. I have checked amazon, ebay, craigslist and freecycle. So far the average price is about $70.00. Copy places like kinkos do not let customers use the machine....and they charge 3.99 per document to punch and bind....ouch! I think I will try calling some local copy shops to see if they have one available for customers to use.
Anyhoo, that's my plan for the day. Will write more later....ta-ta!

Update

The symptoms that resurfaces after I got back from Vegas have eased up enough for me to feel up to getting a few things done, so I've been a busy bee!
I contacted para-transit and am in the process of applying for services, did some wheelchair shopping, since my legs have not been working well lately, and having a chair in Vegas was a tremendous help. Then I sent out a renewal form for state health insurance and food stamps, and a letter to the courts regarding my fees from my eviction a few years back. Poor fellas won't be getting any money from me for a while, but I'm sure they'll live ;-) I scheduled an appointment with my doctor for April 17th for a follow-up and will ask her about an allergy remedy and the pro's and cons of starting antibiotics. I already have the silver protein so she may want me to start that first and see how it goes.
Today I plan to go out for a short walk, as the weather is absolutely gorgeous! It rained hard last night so it is nippy and slightly overcast...my favorite weather! Will write more soon. Ta-ta!

Update

It has been quite a while since my last post, so here's a quick update.
I flew up to Las Vegas on March 26th despite still feeling very ill. I needed a break and a change of scenery. I'm very glad I went! It was awesome! My friend pushed my wheelchair around and took great care of me while we had tons of fun! The symptoms I was experiencing in my last post seemed to fade.
I flew back home on April 2nd....I was tired, but still feeling somewhat ok. Within an hour of touching down, my symptoms returned - heat sick, achy skin, headache, stomach upset, exhaustion etc.....they have just gotten worse since. I'm thinking it just may be my body reacting very strongly to dust and pollen here as we've had lots of wind and everything is blooming. I will be calling my doctor tomorrow to set up an appointment and will ask her to prescribe something for allergies that might help calm my body down.