Lazy day

For some reason today, I didn't feel like doing a thing but holding still..so that's what I did :-)
Stayed in bed all day and dozed on and off. It felt goooooooood. But now I'm ready to get something done. Tomorrow I'll be going to the state office to finish my application for food stamps..yay!....*laughing*....not a huge deal, but it does mean that I get to leave the house!

ZZZZZzzzzzzz

After a very restless night on monday, I fell asleep at 2pm yesterday and slept for 13.5 hours, followed by a 2 hour nap this afternoon. I really needed the extra z's. I am weak and dizzy, but rested...if that makes sense *laughing* I am continuing to raise the dosage of Samento and am now up to 11 drops per day. I hope to pick up the rest of my medications soon.

good news!

I found out on Friday that I can safely take advil or tylenol to ease my joint pain, yay! Since then I have been taking a 200mg advil at night which helps me stay comfortable enough to sleep, and continues to ease my pain well into the next day :)

In other news, I attended my first Lyme Disease support group on Saturday! One of the members there gave me a ride to and from :-) It was great to be in a room full of people who know exactly what this disease does, and who do not expect me to be normal just because I look that way on the outside. We talked in great length about the documentary "Under our Skin" and shared treatment options that have helped us. I'm really looking forward to attending again next month.

Today I joined a yahoo group where I can post photos and prices of things I want to sell for locals to purchase. I'm so excited to have this opportunity to make some cash from home!

Grrrr...

The pain I had yesterday continued throughout the night as I tossed and turned, unable to sleep. At around 4 am I finally conked out.... I dozed on and off til my alarm rang at 8:15. I heard it in the distance but was unable to move. I thought of my doctor and how bad I wanted to see her today....but my body just wouldn't cooperate. I laid there, my limbs so heavy...eyes glued shut ......by the time I was able to pry my eyes open and un-fog my brain enough to move, it was 2pm. Damn. I stumbled to my feet and got to my computer to send her an email, explaining what had happened. The whole time I was typing, I was getting more and more pissed off. I hate what this disease has done to me....it has made me unreliable, one of my biggest pet peeves. To me it is a sign of disrespect. I mean no disrespect when I'm unable to keep an appointment etc, but it sometimes comes across that way...I've been yelled at for it...even punished in a sense by the clinic I go to. If I miss my 3 month check-in appointment, they make me come every 2 weeks, or they will not give me my medication...even though I explain to them the reason I missed my appointment was because I was very ill, and it is not possible for me to come in every 2 weeks. It's even in my chart "client has a habit of not showing up for appointments"....I hate that!!!
OK, takin' some deep breaths here....... gonna lie back down for a bit.

More pain

The pain is worse today after holding steady since the 4th (my last post). I cannot seem to find a position that gives me any relief. Keeping busy is about all I can do, but that is difficult since the pain limits my mobility and gnaws at my brain's ability to focus. I'm continuing to drink plenty of fluids....but so far, it has not helped. I'll be seeing my doctor tomorrow...perhaps she can suggest something that might at least take the edge off.

Pain

I've been in a lot of pain the last two days, mostly in my knees, hips and lower back. It makes walking difficult, but I manage when I need to and there is plenty to do that can be taken care of while sitting or lying down. The pain has also been in my stomach, mostly right after I eat. It does fade though - I'm just a little tender - and is not causing me to vomit, so I'm grateful for that.

Yucky

Dizzy and nauseous today, especially when I try to get up and move around - which I can only do for a few minutes at a time before feeling light headed and out of breath. I'm wobbly on my feet and have very little strength.....been breaking out in cold sweats all day. I feel slightly better when lying down, so I've been keeping to my bed as much as possible.