Tired and thirsty

I've been having bad headaches the last few days and trouble falling and staying asleep. Even with the aid of acupressure and sleeping pills I am unable to stay asleep for more than a few hours at a time. My dreams have also been very strange. Last week I woke up screaming - something I don't recall ever doing before - even though the dream I'd just had wasn't particularly scary. My psychologist said it was probably a night terror. I really hope this phase of not sleeping well passes soon, as I'm getting weaker and more fatigued from lack of sleep.
Another strange symptom I've had for about a week now is feeling constantly thirsty but no matter how much I drink, my throat feels dry and my thirst does not go away. And my urine goes from clear, to dark and cloudy, to clear and back again. (shaking head)

Snnnaaarrrllll

Doctor did not call me back on Tuesday and I have called her every day since requesting that she call me back (snarl). Her receptionist called this afternoon to set up another phone consultation next week.
Neuro symptoms are increasing again after a short break - Jerking legs and arms. I'm still walking ok without cane and have only needed my wheelchair once in the last week, so I hope that continues for a while. Right now I feel very "blegh". Tired but cannot stay asleep, heart rate elevated and some tummy trouble to go with the jerking limbs. Fun!
Some good news tho, I finished the first part of my appeal for disability online. The second part is a bit more involved but can also be done online. Whew!

Senovabeach!

Today has been especially tough. After an early appointment I came back to the house to rest and wait for my phone appointment with my doctor. She was 30 minutes late calling me and I was so weak and exhausted that I fell asleep waiting. The ring was not enough to rouse me tho I did hear it faintly, as if in the distance, I just couldn't move. She did leave a voice message but it contained no information, and answered none of my questions. Ridiculous! She ended by saying she would call tomorrow afternoon. I certainly hope she does, because if not I'm going to be really pissed off!

trembling

I have been feeling more run down than usual the last few days. About an hour ago, as I was standing in the kitchen my arms and legs became suddenly weak and began to tremble. Since then I have been having great difficulty walking and completing simple tasks such as typing, eating and drinking. Heart rate is within normal and I'm breathing well so I doubt I will go to ER this time unless it worsens. I also noticed that my urine is cloudy again. I will mention this to my doctor tomorrow.

My pee returned to normal on Sunday, and I have not had to use my cane or wheelchair in two full days! Yay! Still anxious to come up with a game plan with doc on the 22nd and have been adding to my list of options to discuss with her as I do research of my own. My frustration has lessened a bit as I'm trying to focusing on other things until my appointment.

Grrrrrr

I am feeling major frustration today. After exchanging emails with my doctor, we are no closer to a game plan for dealing with the porphyria that is interfering with my lyme treatment. My legs are responding a little better today after spending most of yesterday in my wheelchair, and I have not used my cane since I woke up, but am in more pain. My pee has been sort of milky/cloudy since yesterday. I have noticed this several times in the last few months, and I'm not sure what it means. I will bring it up with my doctor at our next appointment on the 22nd of this month.

My excitement for the week

A sudden gust of wind during this afternoon's storm ripped the tar off of almost 1/4 of the roof a few hours ago, sending rain water pouring into the attic and onto the porch. I managed to get up the ladder with my dad and we ran plastic sheeting up under the edge of the remaining tar and stapled it down. It only took about 10 minutes, but by then everything on the back porch was completely drenched. My music, books and papers all soggy. Dad called my little brother Drew to come help and once he arrived I got down the ladder and pulled the aluminum trim that was ripped off out of the drive way. By then both legs were shaking badly and about to give out. I made it a few feet from the porch before both buckled. With some effort I was able to crawl inside where I rested for a few minutes before attempting to stand again. No go...so I got to my wheelchair and hoisted myself into it. it has been almost 20 minutes and my legs are still shaking and I'm unable to really move them without help. I'll likely be in my chair for the evening, and maybe a bit of tomorrow.

Hitch

I am noticing lately that my left leg seems to be considerably weaker and harder to balance on/control than the right. This causes me to lose my balance mid-stride and take a few side steps to correct. It also makes rounding corners difficult - I bump into walls - and leaves my gait very halted and uneven. Nurses at the hospital said I have a 'hitch' in my walk as they saw me on the treadmill, my left leg lagging. I am considering purchasing a cane for use around the house.