Yay!!!!

after several months of waiting, I believe I am finally having another episode of intermittent Porphyria. Stabbing pains in abdomen, hands and feet began on friday and I now have a low grade fever, difficulty eating and going to the bathroom and my urine came out kinda pinkish this morning. Yay!!! This is what I have been waiting for!. I will begin the 24-hour test first thing in the morning. I have never been so giddy to be in so much pain...lol

A weird day

It's been a weird day. Numbness in lower left side of my face (around ear and jaw), stomach upset and pain, bad heart burn - which is very very rare for me - and a sharp pain in the center of my chest (which has since gone away) that increased when I exhaled. My heart rate has been slower than usual, hovering in the 75ish range most of the day, only a few spikes above 100. Still very weak and shaky. I feel best right after I eat. An hour or more after, I feel like I will pass out from lack of food, as if my blood sugar has suddenly dropped, even tho I know that's not possible. Also, in the last two days I have begun to suddenly shake and sweat when lying down, feeling like my heart is beating very hard...like a tiny hammer in my neck. It usually subsides within an hour.

Back on Samento

Since my last post on the 19th I have been woken nightly with the same stabbing pains shooting down my forearms into my wrist and fingers. Ibuprofen helps but does not eliminate it. My hands are also sensitive to touch in certain places, as though my nerves are on the outside. I began having this pain shortly after I ran out of my B complex supplement. I am curious to see if the pains will subside after I start taking them again. I will ask my dad to pick some up tonight.

I went back on Samento two days ago and am herxing pretty hard. I am extremely exhausted and weak. I also have persistent nausea and diarrhea, which could just be a coincidence and not connected to the Samento. I just woke up after sleeping 22 hours, my heart rate fast ( around 122) but pulse faint. I feel heavy and very weak and am still having difficulty expanding my lungs and feel as though I can't catch my breath. I will take my medicine and eat something, then probably lie back down.