Snnnaaarrrllll

Doctor did not call me back on Tuesday and I have called her every day since requesting that she call me back (snarl). Her receptionist called this afternoon to set up another phone consultation next week.
Neuro symptoms are increasing again after a short break - Jerking legs and arms. I'm still walking ok without cane and have only needed my wheelchair once in the last week, so I hope that continues for a while. Right now I feel very "blegh". Tired but cannot stay asleep, heart rate elevated and some tummy trouble to go with the jerking limbs. Fun!
Some good news tho, I finished the first part of my appeal for disability online. The second part is a bit more involved but can also be done online. Whew!

Senovabeach!

Today has been especially tough. After an early appointment I came back to the house to rest and wait for my phone appointment with my doctor. She was 30 minutes late calling me and I was so weak and exhausted that I fell asleep waiting. The ring was not enough to rouse me tho I did hear it faintly, as if in the distance, I just couldn't move. She did leave a voice message but it contained no information, and answered none of my questions. Ridiculous! She ended by saying she would call tomorrow afternoon. I certainly hope she does, because if not I'm going to be really pissed off!

trembling

I have been feeling more run down than usual the last few days. About an hour ago, as I was standing in the kitchen my arms and legs became suddenly weak and began to tremble. Since then I have been having great difficulty walking and completing simple tasks such as typing, eating and drinking. Heart rate is within normal and I'm breathing well so I doubt I will go to ER this time unless it worsens. I also noticed that my urine is cloudy again. I will mention this to my doctor tomorrow.

Update

It has been a while since my last post. Since then I have stopped increasing my dose of MSP to allow myself some herx-free weeks to get paperwork in order for social security and to start making winter inventory for my online shop. I have also had to stop taking my Samento as I cannot afford to get another bottle til I sell some things. I hope to be able to go back on the Samento and begin increasing my dose of MSP by the end of October.
I saw my doctor last week. I spoke with her about starting an alkaline diet to make my body less hospitable to the bacteria. She also suggested I go off wheat as I've had a lot of tummy trouble. So right now my diet consists of what is acceptable for both celiac sufferers and those on a strict alkaline diet. It can feel a bit limiting sometimes but the upside is that I get to try out new recipes. Yay!