Changes

I continue to be amazed at how this disease randomly changes in the way it affects me. While my speech is clearer now most of the time and I don't have as many twitching episodes, I now have more joint stiffness and pain, and random jerking movements; mostly in my limbs. My left wrist is very sore all the time, as though it's mildly sprained and I cannot put weight on it without intense pain. My left knee aches constantly and walking is difficult. Also my muscles have weakened significantly in the last few months. My legs and arms will buckle when trying to move around or support myself. I've also had recurring pain that is unlike any other. It is not a sharp pain, but a dull nagging ache...it feels like my bones are screaming at me. The pain is more aggravating than anything else and leaves me wanting to grinding my teeth in frustration Many have asked if I've told my doctor all this. Frankly, I don't see the point. It is all caused by the disease, so when I treat that, it will all go away. I'd rather not waste my precious little energy trying to treat symptoms when I could be raising fund to treat the underlying disease. For now I will take ibuprofen to dull the pain so I can focus on my goal.